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Natioanl Diabetes Goal
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NCDP Programs Promoting Change at the Federal Level
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Federal Spending On Diabetes Study

In 2007, NCDP commissioned the nationally respected health care policy research firm Mathematica Policy Research, Inc. to identify the range and kinds of federal programs, authority and funding that may influence the incidence, prevalence, treatment and progression of diabetes.

The results of the report showed that there is a lack of effective, coordinated federal leadership and spending in diabetes prevention, treatment and care. Key findings from the study include:

  • The federal government spends nearly $80 billion annually to treat people with diabetes and care for its complications.
  • This accounts for roughly 12 percent of total federal health care spending.
  • Only about $4 billion is spent on disease prevention and health promotion activities likely to affect diabetes.
  • Though 18 out of 21 government agencies have their own individual diabetes programs, there is a lack of alignment and coordination across agencies.

In response to these conclusions, NCDP is working to promote coordinated federal leadership and spending on diabetes prevention, treatment and care by using research to support policy and legislative change.

NCDP and its membership association partners issued the following recommendations to Congress to improve federal leadership and alignment of diabetes resources:

  • Diabetes should be raised on the national agenda through a Congressional resolution recognizing World Diabetes Day.
  • Congress should evaluate its system of assigning scores to new legislation, to ensure that preventive health care measures are reflected as costs savings.
  • As the nation's largest purchaser of health care, the federal government should create a model for health plan benefits that reflects attention to diabetes care and prevention.
  • Members of Congress should provide information and resources about existing Medicare diabetes benefits to their constituents.
  • Funding for diabetes prevention, early treatment and research should be at a level proportionate to the national burden of diabetes.
  • A National Diabetes Coordinator should be appointed to manage the alignment of federal diabetes programs. (H.R. 4836, S. 2742)

In June 2007, NCDP held a Congressional Briefing to share the study results and recommendations with the Congressional Diabetes Caucus. Click here to view a photo gallery and video from the Briefing.

Following the release of the recommendations, concurrent bills in the House and Senate were passed showing Congressional support for recognizing World Diabetes Day. Legislation to create the position of National Diabetes Coordinator was introduced in the House and Senate and is gaining support. In addition, NCDP has initiated the federal scoring project.

Federal Scoring Project

Another recommendation stemming from the Federal Spending Study addresses the process of "scoring". This is the method through which key federal agencies, such as the Congressional Budget Office (CBO) and the Centers for Medicare and Medicaid Services (CMS), calculate the federal budgetary effects of pending or enacted legislation, rules, or waivers and their estimated impact on spending targets. Within health care, and specifically chronic disease treatment and prevention, the federal scoring process does not make use of disease-based modeling to inform projections of federal health spending.

In response, NCDP has commissioned research by O'Grady Health Policy that assesses current cost estimating models and recommends ways to change current practice by adding cost-estimating approaches that more explicitly incorporate projections of the disease burden in the future and the expected health care spending as a result. Diabetes serves as the model in this study. Such 21st century modeling will likely to provide insights into the challenges we will face in the future in a manner that current projection approaches do not.

The research has been submitted to a peer-reviewed journal and a series of recommendations are being advanced by NCDP in collaboration with Government Affairs. Briefings with NCDP member associations, congressional members and their staff as well as other disease groups and key agencies are helping to build interest and momentum on this issue and include it in the ongoing debates on health care reform.

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